Genomic Counseling — Ethics, Privacy & Consent — Hands-on

Understand the key ideas behind genomic counseling with a focus on ethics, privacy, informed consent and communication. This module is designed to help technical and clinical teams appreciate how results, uncertainties and data use should be explained and documented in a responsible way. Content is for training and awareness only and is not a substitute for professional medical, legal or genetic counseling advice.

Genomic Counseling — Ethics, Privacy & Consent

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Session Index

Session 1 — Genomic Counseling & Communication Foundations Session 2 — Ethics, Privacy & Data Protection Concepts Session 3 — Informed Consent, Expectations & Limitations Session 4 — Mini Capstone: Counseling Narrative & Consent Checklist

Session 1

Fee: Rs 8800

Genomic Counseling & Communication Foundations

The role of genomic counseling in clinical genomics (high level)

supporting understanding of tests and results setting expectations and boundaries snapshot working alongside clinicians and counselors idea

Basic communication principles for genomics discussions

plain language and avoiding jargon mindset checking understanding and questions snapshot sensitivity to emotional and cultural context

Types of genomic findings and how they are framed

pathogenic, likely pathogenic and VUS ideas actionable vs non actionable concepts incidental and secondary findings snapshot

Session 2

Fee: Rs 11800

Ethics, Privacy & Data Protection Concepts

Core ethical themes in genomic testing (conceptual)

autonomy, beneficence and non maleficence ideas justice and fairness snapshot family and community considerations mindset

Privacy and confidentiality in genomics (high level)

sensitivity of genomic and family information access control and need to know idea de identification concepts snapshot

Data use, sharing and broad consent ideas

clinical care vs research use thinking biobanks and data reuse snapshot participants' expectations and trust

Session 3

Fee: Rs 14800

Informed Consent, Expectations & Limitations

Elements of informed consent for genomic testing (high level)

purpose of the test and possible outcomes benefits, risks and uncertainties snapshot data storage and sharing explanations

Discussing limitations and uncertainties with patients

possible negative and inconclusive results variants of uncertain significance mindset re contact and reinterpretation ideas

Preferences around secondary and incidental findings (conceptual)

opting in or out of certain categories impact on family members snapshot documenting choices and changes over time

Session 4

Fee: Rs 18800

Mini Capstone: Counseling Narrative & Consent Checklist

Start from a short anonymised case and test scenario

Theory + Practical

Sketch a simple counseling style narrative outline

how to introduce the test and purpose explaining possible outcomes and next steps noting key questions to invite

Draft a high level consent and privacy checklist

topics that should be covered how choices and preferences are recorded notes for collaboration with clinicians and counselors

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Genomic Counseling — Ethics, Privacy & Consent Training | Communication, Consent & Data Protection in Genomics

Genomic Counseling — Ethics, Privacy & Consent — Hands-on